Sorry for the lack of updates. Gabi is doing so incredibly well. I just cannot believe it. She is truly a miracle.
Monday we had a follow up appt at CHW with Dr. Rao, our cardiologist. She had a chest x-ray, labs drawn and an exam. He said he has never seen her look so great. Her chest was totally dried out, her sats were a little low at 79, but they SHOULD increase over the month or so to the mid 80’s. He said we can try and lead a “normal” life now. Although I don’t know what that will mean for us, to hear that coming out of my most trusted doctor was like God’s voice telling me…you did it. You made it through. He chuckled at the tears in my eyes and shared in my joy. Our next appt at CHW isn’t for 2 months!!!! 2 months!! Unbelievable. How am I going to stay away from all of my new friends?
I just cannot express to you how elated we are. I know the next few years will still be up and down and probably a few hospital stays with colds and flus, but I know we will make it. We have reached that light and now we can just enjoy every smile and every coo and every milestone we share with Gabi. She is so happy and so much more relaxed.
The next big hurdle will be therapy. She has never eaten anything by mouth and she is quite behind developmentally. But we’ll get there. We have speech and PT and OT coming over starting next week. And we will continue with our home nurse visits. WE are so blessed and so thankful.
If I listed everyone that has been there for us, it would be many pages long. I know there have been many times that I have been aware of a family needing help/support and I MEANT to get around and help them but never found the time. Never again. I will pay all the help and generosity forward to others that need God’s grace in their life. I have learned so much from my Gabrielle and all the other babies in the hospital. I still think there could have been an easier lesson, but God knew what His plan was for us and knew that I needed a kick in the butt.