Gabi got to come home with us last night and we are just thrilled! We all got to sleep in our own beds. She is doing great! One of the surgeons gave the go ahead for a 3-4 hour recovery and we held the nurse to that moment. 4:00 and we were out the door! She was cranky cranky cranky for those few hours after waking up, but mostly she was cursing in baby language at the IV and board holding her arm straight. Then she had the pulseox on the other hand so she had no hands and she did not like that one bit! Once we moved the pulseox to her foot at least she had one hand free. Her sats remained at about 82-83, which is great for her and her heart rate was stable at around 100, so we ran we had the chance.
This morning she is back to her usual self, laughing with her brothers and sister. Thank goodness that procedure is over. Not the greatest answers, but at least we have investigated all possibilities. The ENT surgeon put probes on her vocal chords to see if there was any movement and she saw lots of muscle fluttering with the paralyzed left one, so we are very hopeful for a full recovery. And to know there was no evidence of any aspirations is so reassuring.
We haven’t spoken with Dr. Rao yet, but I am sure we will connect soon. I am anxious to hear what he has to say about her Echo. She is doing so great, I was so surprised to hear that her heart is not doing that great. One day at a time…
Thanks for all the prayers and support! We have wonderful friends and family!!