Gabi has a big appointment coming up on Monday April 8th (Big Ethan’s birthday). She will have an ECHO, an EKG, see Dr. Cava for cardiology. She will also see Dr. Martinez in GI and Dr. Lee in neurology. phew. It’s going to be a long day. Gabi’s PT at school did a small study trying to determine quantitative data in order to specify goals for her IEP. She measured Gabi’s walking speed from her classroom to the school office compared to a “normal” peer her age.
Gabi’s average speed is 2.15 feet/second, or 130.4 feet/minute. The “normal” peer average speed was 3.5 feet/second, or 211.6 feet/minute. I am so glad to have this data to actual see where Gabi falls.
We just back from Nashville visiting our most favorite people-The coyle cousins. Jenn, Tessa and Coco. It was a wonderful vacation! We only had one scare with Gabi and we did avoid the ER. Jenn and I were getting her in the car to go go the hospital but the crisis was averted! She had been throwing up, she was lethargic and looking very cyanotic (blue). We didn’t bring our pulse ox with us so didn’t know how low her O2 was. We got into the car and she perked up a little watching Dora, so we decided to drive around and call the cardiologist on call at CHW. We stopped at CVS and got an over the counter pulse ox and it read 85-88 so she was OK. We gave her a feed of pedialyte and she tolerated that ok so we drove around a bit and decided to go back to Jenn’s. The next day she was a lot better! No clue what it was. Exhaustion perhaps from the excitement of traveling?
Speaking of traveling, yes we jammed our family of 7 into our minivan and drive to TN. It was only 8 hours and the kids did great!
When Ethan Jr was 3 1/2 months old and Tessa (Ethan jr.’s third cousin once removed… yes I did figure out) was about 9 months old, we moved in with cousin Jenn (Big Ethan’s second cousin once removed). Needless to say, when you live with someone there is a bond shared that never goes away. Jenn and her daughters, Courtney (Coco) and Tessa will forever be some of my favorite people! They are generous, funny, hardworking and oh so smart… the list of good qualities could go on for a long time.
Here are a few more pics from the trip. We were hoping… really praying for warmer weather but no such luck. It actually snowed in Nashville. Boo!
Much love to you all,