Oh the feedings…
Gabi is doing great. Her feeds are the biggest challenge for us now. We have an appt at CHW with the feeding specialists in March, but Dr. Rao’s nurse is trying to pull some strings and get her in sooner. She turns a dark purple when she is gagging and choking on her spit up and then coughs and sputters out the throw up. Sometimes it is just a small spit up that eventually makes its way out, but other times it is projectile and shoots out of her mouth so far that it if baby puking was an olympic sport, Gabi would cerainlty get the gold medal! The kids cheered her on this morning and gave her a quick gold medal ceremony. We found it hilarious or maybe we were just delirious. A little of both.
I was trying to get clearance over the phone to try adding rice cereal to the formula to thicken it up a little so it wouldn’t come back up as easily. Never got the clearance because they want her to see the GI doc and feeding clinic first, but guess what? Yes, I tried it. I knew it wouldn’t hurt her so I went with my motherly instincts and went for it. Well, it didn’t help anyway. The spit up and vomit was just thicker too. Oh well. A for effort, right?
She is getting big and a lot stronger. Therapies have started and are helping her a great deal. I check her sats often and they are hanging in the mid- 80′s which is excellent for Gabi! She is doing well… we are quite blessed.
Love,
Teri
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hi…have they tried Reglan for the spit up?
Also, ask about fundiplication (easy surgery).
Glad you are well….
am
Hope the feedings get easier soon and glad to know that she and you are doing well overall!
hi Teri.
Oh yes, the feedings. Today I tried to get Ben to take a bit of peaches. He let me put it in his mouth and got a smile…whoooo hooo….until he actually laughed and spit it at me. Nice. Oh but we really are blessed…peaches, spit up, puke and all. I am so glad to hear things are on the right track.
Looks like Ellie is doing well too. Oh my- I am sooo happy.
Really looking forward to Carsyn’s benefit…Can’t wait to see everyone. Kinda feels like I am going home….
Take care! God Bless- miss you!
It has been TOO LONG! She has gotten HUGE since the last time I have seen her. I think puke is part of being a HLHS parent, seems like everyone does it. We are on Pediasure it tastes better and she gets more fat from smaller amounts even if she pukes! Miss you all and Give the kids a hug from Lilly!