So, when Gabi wakes up sometimes her eyes are just a slip open and I swear she is taking names to who is poking her at the moment. Today, she got poked and messed with quite a bit. Her RA line (a line that is inserted into her artery in her wrist that measures the pressure going away from her heart and into her limbs and tissues) was becoming “blanched” a term the docs used to say that there was leakage out of the line itself and it was leaking fluid and blood. It wasn’t causing her any pain, but they needed to redo her line in her foot or her other wrist. It is similiar to an IV, but more invasive. One of the resident docs tried putting a new line into her left wrist after giving her some pain meds, but couldn’t get the line in. So, the attending doc would try again in her foot later. She was fairly uncomfortable again today until the nurses finally agreed to try a new pain med. The ketamine was OK, but it only lasts an hour or so. They decided to give her droperidol that lasts for 6-8 hours. Phew. Finally she was sleeping peacefully. I asked the doc for some for me; he just laughed. He obviously thought I was kidding.
The attending came and messed with her again, but did successfully get the new RA line in her foot. Lots of silent cries that continue to break my heart. When they pulled out the old line in her wrist, the nurse was putting pressure to help stop the bleeding at the entry site, but when she let go of the gauze, blood squirted out of the wrist directly at nurse Beth!. Everyone got a good laugh, it made me a bit sick to my stomach watching my kid’s blood squirt out like that, but Gabi did get her good.
Her numbers were holding steady today…blood pressure was actually a little high because she was so mad most of the day. My friend Amy came to visit today and she was a great support as she has been through something similar with her son. As I held Gabi’s hand, Amy held mine. Thanks for the visit Amy.
I just got home and when I walked to the front door, I saw a nice letter from a neighbor taped to our door. I was out of sad and scared tears today, but there are always an abundance of happy tears left when you read a note from a friend… AND a homemade dinner was here waiting for us. My sister was here with the kids and all was under control. We are so blessed and grateful for everyone’s kind support through all of this.
I will call everyone back and email all of those who have sent us a message as soon as I can.